You know me, Sleeping Beauty and I wanted to tell the real story. At this time were adding other Fine and Beautiful Sleepers who felt identified with the reality that through my life with this disease. Many people are not diagnosed, the spirit that encourages this work is to get all possible information and know our rights.
Today was a special day on September 29, we gather, provide and we open the Narcolepsy Forum, the first devoted exclusively to this disease.
Companions of the group: not named and reserve their identity until they decide otherwise, I appreciate the openness, sensitivity and show solidarity, not only care about what happens in their lives, as well as I want to reach out to others. Thank you all for joining!
I also thank Any Rodriguez, president of Geyser that is taking the information in other ways and opened an unexpected view to working together and Dr. Maria Prats that contacted us. Matias Provides for the design of brochures and Miguel for technical support.
Dr. Claudio Podesta, a neurologist specializing in Narcolepsy answering my concerns from the scientific field. It goes back a note of it to be reread and clear doubts.
A hug to all and best dreams!
Sleeping Beauty
http://tengonarcolepsia.com.ar/articulos-y-publicaciones/
4th July 2011 at 18:53
I sleep all day and at night I'm super awake! I sleep at around 6 in the morning and m awake between 18 and 20 hrs. During the day I put the alarm clock but I turn it off and I have no strength to get up! My family was awake and I can not keep his eyes open! I have narcolepsy? I'm from La Rioja, Argentina, and not to resort doctor, if you had that information would be helpful to provide me!
Thank you!