In this post I will not give the answer to your questions, I will ask them.
The debate is open. Is general practice and public health are more utopian?
As narcoleptic try to find all possible resources for better care and have available to us the answers that would give us the health authorities involved. General practitioners who know the Narcolepsy and can join together the specialist
We know that people are undiagnosed. Those who had that luck was in a private school, paying for the consultation or Welfare had in his book a suitable place for it.
What if you do not have health coverage? Private practice to a specialist should be around the $ 300, a polysomnography more than $ 2,000 and lack the Multiple Sleep Latency Test.
Once diagnosed, Modafinil is usually the drug of choice and we know that the price is $ 100 times the 20 tablets and is indicated in 1 to 2 days
(Maximum) and not in the PMO.
This is my wont, how to arrive at the diagnosis and treatment without Social Work?
How do you access the medication?
Narcoleptic comments expressed in this Blog on prepaid and social work
"... In the subsidiary of BS AS, medical audit because I rejected the request that study argued that the expert in sleep disorders had ordered did not serve to detect the narcolpesia. Incredible. After they realized the enormity posed, but I passed the $ 700 it cost, decidiern be "kind and generous" and gave me ... $ 150. A joke. So I went to smoke and talk to the manager who was surprised because he thought I should be happy because at least I had known something After an hour of discussion, the conclusion was that we were "guinea pigs" that science progressed faster than they could support social projects that were in limbo, in an area of "medical vacuum" where we can do little for being so "unique and different." I, very angry, I said did not have the guilt of being a medical rarity, and above all the trauma I was suffering from the impact of novelty, they created more stress to me treating me like a case in a million, without rights, fully discriminated. The reality, and the manager told me, you do not want to sit predecent, because if I gave it to me as a case was registered, and they could not deny anyone. The solution? Through the figure of the "exception" I threw some more sleeves for me to stay happy and fuck more. Most unfortunate of all was the manager's phrase "you imagine what would happen if you had a government social work, and I had to deal with benefits and public services" .... "
"..... These places need to know to assist us. He also asked whether in my case I take modafinil I can have more discount if I go to a particular hospital Now I buy all my neurologist is not because of my family prepaid has not accepted treat me because it is a preexisting condition but had never found . They think it is genetic and not just cover it. To you it happened to you? in another post you said you took a private hospital, is the same? .... "
".... What am I thinking? In each of us, from his corner of the world, can bring something, first thoughts, then actions to achieve, for example, that the Organization of the United Nations through the Pan American Health Organization, turn a recommendation to ministries of health in Latin America to begin to include narcolepsy and other sleep disorders in public health programs, a dream? maybe .... "
"First say no .... I suffer from narcolepsy, but I have a student who does. I found this blog through Sleeping Beauty and the Sea which left a comment on ours. Actually, we do not suffer this disease as must occur with other diseases considered 'rare' by its rate of incidence, it is forgotten in the public, and therefore of political speeches and other efforts .... "
And I close here, I do not want to be depressed, on the contrary take heart to fight for their rights and those living in silence for suffering discrimination at work or not being treated by the absence of the Argentine State and the Ministry of Health is not everyone equally. And I thought that discrimination was a matter of ignorance ......
A CULT PEOPLE CAN NEVER BE ENSLAVED. Manuel Belgrano
Greetings to all and
Good dreams
Sleeping Beauty
16th January 2010 at 14:04
Flower of this issue of Social Work! And that at least I can pay me a pre-paid, beyond them to behave or not to match the situation. I can only try to imagine the ordeal that a narcoleptic must live if above does not have a social work "decent" if there is something. Not only must fight against ignorance but against the ill will and lack of concern for others. But as the union is strength, I think Bella, maybe the answer lies in organizing, to create awareness and get knowledge where there is only despair. Hence the great utility of blogs like yours or mine, not to mention the forum. You lit a match, that igniting torches by little, in small caves to dark throughout the world. I also think that the key is craeción an association, like our Spanish brothers, so anything you know in this regard is welcome. We will have to start small, but to get somewhere. Thank you for everything you do! A great big kiss. And hopefully our community will grow day by day. Greetings from Patagonia. Mariana