Difficult to prove unless you have said you are leaving the job because you have narcolepsy .... And that will never happen because you'd go straight to report, you'll get fired when you pass away because otherwise you and give you license will be the perfect occasion .....
And to focus on the subject see what things make you be discriminated against or hide with your neurologist and drugs or worse deny your disease and treatment leave ....
The Web is full of videos with people falling asleep on the plate of food in the middle of an interesting conversation, everything is exaggerated to the point of ridiculousness. Well, the subject gives to the joke? It never happened to me nor to the other narcoleptic I know.
Not denied anyone laugh but should see that this is NOT narcolepsy
Throughout my life I told a few times, almost 20 years ago there was no information available to all and was very complicated to explain, and tedious, and pointless to look at me like a freak.
There is serious research, much study time, countries and laboratories seeking solutions to this autoimmune orexin-deficient and neuroscience professionals doomed to treatment of Narcolepsy.
It would be appropriate to note that things are NOT narcolepsy.
Laziness: One of the deadly sins, which no doubt pierced the minds of all the propaganda of the holy churches (with apologies to God), even atheists, who believe that we are lazy if you count that a nap of 10 'twice a day keeps us well.
"Hangs": that is to be distracted from their work, you know that there are surgeons with narcolepsy and good! Therefore the use of the term that fits anyone, is an excuse that may discriminate when a job.
Psychiatric disorders that manifest during sleep, one has heard the most bizarre dreams of others, but suffice to say that we have nightmares almost constantly and waking paralysis by default in the REM (sleep paralysis), so that this also shoot will know how scary the listener will be is it not dangerous?
The difference between daytime sleepiness experienced by the patient with narcolepsy and any subject is detectable many by a study that marks the same cycle. But if we look around at the cinema or on a bus, there are people sleeping everywhere and do not have narcolepsy, sleep does that also must be "bad"?
I never thought of will to bring together people with this disease, build a blog and forum out to see me in front of individuals who are almost forced by society to shut up .... good way to make any claim of the medium.
As I said in another post, do not tell your work ... you get fired. Fortunately I contacted people from other countries that weathered this difficulty and can speak openly, without it being an impediment so remarkable.
But there is something, and it is the courage to go through on the moral judgment that could be submitted, while remaining ghosts hiding the name of something that we must spread. A disease that can cause significant distress and who suffers no quality of life improve with treatment, staying in the popular discourse: we must take heart!
Yes, we must have, but not cured with courage, because until now is incurable and irreversible.
My love to all of you s
Sleeping Beauty
22nd June 2010 at 9:32
Hi Sleeping Beauty, very true your article, at least in Mexico I think it's the same, I do not know any company that I understand the situation that crosses every day a narcoleptic, and is not to be understood, should simply accept it, but unfortunately it is not.
I personally believe that if we suffer some discrimination, currently working on my own business, so that I have that problem, but before working here, working in 3 different companies and all I suffered every day that when I arrived had sleep attacks to go buy a coffee or an excuse to leave the office and not fall asleep at my desk, as it was almost inevitable. I wonder what would have happened if I had, first of all know what suffering? and second, had informed the company about my condition? .... I think the truth is unlikely that they understood and let me take a nap even 15 min.
When I was in high school in the afternoons working in an office and twice I fell asleep without realizing it on the desktop. Thanks to a companion that both times he went to wake up before my boss knew it, never said anything but surely thought I was awake, the truth is that I think if I had seen my head I would put a minimum of good scolded.
Greetings and thank you for enriching the poor information that exists for Narcolepsy, thanks to people like you is that you make a change in the attitude of the people.
Paola T
23rd June 2010 at 15:24
hello my name is Macarena, and suffer from cataplexy. No I have narcolepsy, but cataplegia. It's frustrating, I spend most of the day trying to control, and normal life, but I find it tiring, stressful and very hard ... I need help, but ... what?
24th June 2010 at 8:54
Thus, Paola, will take time and understand. Years ago no one imagined hiring a blind (blind) or a person who could not walk and was reaching that possibility. We are pioneers in these places to spread away from the law .... I read the U.S. (hopefully apply as stated) or France .... But we're in this part of the world. I'm glad you have your venture because it gives you another way of approaching life.
Let Mexico, and continue to meet in a blog or wherever, to see if we can have more data centers. My love from here!
Sleeping Beauty
9th July 2010 at 21:55
i know what you say. i to have these diffaculties frustrated with doctors, relatives everyone. no one Understands. i can not drive to work, if i were to get there I Could not last half the day without passing out. and i cant get a diagnoses for narcolepsy after seeing doctors for 12 years.
11th July 2010 at 17:51
Hello Beauty! Always with you hot topics, impossible not to leave a comment ... In my case, I was lucky to have freedom to choose the hours they worked or studied, and therefore did simpre afternoon. I think the worst discrimination I have suffered, was what I imposed myself for many years, believe me lazy, apathetic, fickle, which countered with a job at 150 percent, autoexigiéndome more than was healthy. It was never enough in culture to which he had inherited, without permission to be different. Mode using "bulldozer" and was destroying everything because he did not accept my true self, the one with the past. but that is just as important as any other. There is no worst critic than yourself, I think, and sooner or later, you bill arrives. Well, until then my with my singing. Take this opportunity to send you a hug and a kiss, and wish the best for these chilly winter days ahead. Nana OOO XXX
11th July 2010 at 19:47
Hello Nana, a pleasure to read you as always. True what you say, self-discrimination, self-imposed .... all we have imposed on society. I identify with this modality bulldozer ... Take it easy from us reconciles us and allows us to speak of narcolepsy with precision and try to stop being unknown.
)
A hug and take care of the cold.
11th July 2010 at 19:50
Macarena, if you have cataplejías is imperative that you see a neurologist. Any symptoms should be checked for it and make the corresponding studies.
A love
15th August 2010 at 12:53
Hello girls!
And the issue of self-demand is rather complicated, because in the midst of a consumer society, where you measure as you produce is difficult to talk about doing things in different times and times to others if things are done in a way different there is a clash with what everyone considers "normal" and no one wants to be seen as less competent, so we struggle with ourselves, which is the worst of the battles, because no one is so crude with us as we are. I think it is difficult and is part of the process of accepting narcolepsy and I love what Nana says "did not accept my true self, the one with the past, but that is just as important as any other." If we can find that out in us, I think no need more ... Kisses.
27th September 2010 at 17:50
hi good to say that all disease is difficult to carry every day I took him but I have narcolepsy and cataplexy increasingly more difficult for me to not live a normal life with today I fell down and cut me with a glass sleeping on top of the crystals until a relative came home and wake up people do not understand and most laughs over to fall asleep there are worse things you usually say without realizing that you do not have dependent life is too risky in some situations at work or daily House cuanddo attacks can happen to you least expect it once was cooking and almost burned the kitchen for an attack that I ask people please do not laugh at this as serious diseases and pampered with love to the people who have a kiss and good luck to all who will go best if someone kiere contact me is profesorajedrecista@hotmail.es
28th September 2010 at 12:52
Hello! I am a new narcoleptic, or rather newly diagnosed. Yes, today I met with my doctors give me the news after I suggested this blog, a fact for which I am and I'm very grateful! I'll be writing to the forum, because I doubt arise soooo I saw my reflection in every note.
Thanks again!
Pachug
28th September 2010 at 21:19
Pachug Hello, welcome, we have you and you with us for anything you need.
mind that you can have a good life!
A love
Sleeping Beauty
28th September 2010 at 21:28
thank you very much! for all your time that you dedicate to this broadcast, without people like you would be much more difficult for me and my family get to much information!
contaminated with me too!
Pachug
30th September 2010 at 17:15
hello good greetings from Murcia thanks for answering, I am delighted to contact me as not many people can understand the situation of those who suffer from cataplexy narcolepsi for anything I remind my mail if you want to talk or anything else profesorajedrecista@hotmail.es
7th November 2010 at 10:08
Hi, today I discovered this blog and I'm happy! hopefully you can with all of you my experience and I can improve.
I had attacks of cataplexy but since I went to the neurologist and doctor does not give me again. Do not understand why some people still happening if medic for this. When they talk about medication Xyrem face or something, that medicacin xq?? I take very cheap medic. Estrara well? X please tell me I need you! - A kiss to all.
8th November 2010 at 18:36
Hi Julian I take Xyrem, Modiodal and voi tofranil but did not improve in spurts today I got like 4 times I fell to sleep and sometimes I have two or three good days almost nothing and suddenly 4 or 5 in a row I would like to know what medication you take to also see if I improved I hope your answer thank you very much my email is profesorajedrecista@hotmail.com
January 6th 2011 at 4:19
Hello Bellisima! Interesting blog, the truth is that I write on behalf of my son who suffers from "Idiopathic Hypersomnia", Epworth score 24/24, we have learned "empirically" to live with this disease because unfortunately our professionals do not help us much in terms of handling thereof. As for medical treatment not imagine with all those we tested and the disturbance does not yield. As much as I read I have a feeling that the evil of my son was due to hyperglycemia suffered when he was in my belly. If desired, the more interested we exchange experiences about Feel free to contact me: amabashappy@hotmail.com
January 11th 2011 at 23:24
Hello Armando, I think it gave out the answer Quete before. What I want to know is that this is a place for HARING you need to make life better, in this case, your son. If esribís to tengonarcolepsia@hotmail.com privately you can ask whatever you want. Sos of Argentina? We are working on Narcolepsy and hypersomnia, and decided to just not be the idiopathic outside consultation and support.
A love and we want to ask for it.
Sleeping Beauty
January 11th 2011 at 23:25
Rectify, is Amanda! these keys ......